Resources

As an organization we are purely focused on funding research. However, there are many great organizations with patient resources and registries:

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Cure CMD

https://www.curecmd.org

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Fundacion Noelia

 https://fundacionnoelia.org/en/ 

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Global Registry for COL-6 Related Dystrophies 

https://collagen6.org/

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Muscular Dystrophy Association

https://www.mda.org

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