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Resources

As an organization we are purely focused on funding research. However, there are many great organizations with patient resources and registries:

Cure CMD

https://www.curecmd.org

Fundacion Noelia

 https://fundacionnoelia.org/en/ 

Global Registry for COL-6 Related Dystrophies 

https://collagen6.org/

Muscular Dystrophy Association

https://www.mda.org

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